I recently met with constituents and a representative of the charity DEBRA to discuss the skin condition, Epidermolysis Bullosa (EB).
Unfortunately, there is currently no cure for EB so it was helpful to meet with affected constituents and DEBRA to discuss how existing drugs and treatments could be repurposed to help improve outcomes for those living with EB.
I will continue to support in any way I can and help to try and raise awareness of EB.
Thank you to my brilliant local constituents for meeting with me to discuss this.