If there is one thing you do today, please check out the charity DEBRA who do such fantastic work as a patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB).
The affected constituents I met last week were incredibly inspiring and some of the bravest young ladies in the Stroud district. The meeting has kept me up at night since.
I am committed to supporting DEBRA in any way I can and helping to raise awareness of EB. Please do check out DEBRA’s work and support them if you can. Link to their website below.
